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How to use this Website?

This website is for medical and paramedical professionals working in the field of spinal cord injuries. It contains learning modules for the whole team as well as for doctors, nurses, physiotherapists, occupational therapists, assistive technologists, social workers, psychologists and peer counsellors. The modules are intended for medical and paramedical students and junior clinicians. Others who have yet not assimilated sufficient knowledge on comprehensive management.

Psychosocial issues regarding family members

  1. Rossi Ferrario S, Baiardi P, Zotti AM. Update on the family strain questionnaire: a tool for the general screening of caregiving-related problems. Qual Life Res. 2004 Oct;13(8):1425-34. doi: 10.1023/B:QURE.0000040795.78742.72. PMID: 15503838.
  2. Scholten EWM, Kieftenbelt A, Hillebregt CF, de Groot S, Ketelaar M, Visser-Meily JMA, Post MWM. Provided support, caregiver burden and well-being in partners of persons with spinal cord injury 5 years after discharge from first inpatient rehabilitation. Spinal Cord. 2018 May;56(5):436-446. doi:  0.1038/s41393-017-0047-x. Epub 2018 Jan 16. PMID: 29335472
  3. Jeyathevan, G., Cameron, J.I., Craven, B.C. et al. Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients. BMC Neurol 19, 117 (2019).
  4. Jeyathevan, G., Cameron, J. I., Craven, B. C., & Jaglal, S. B. (2019). Identifying Required Skills to Enhance Family Caregiver Competency in Caring for Individuals With Spinal Cord Injury Living in the Community. Topics in spinal cord injury rehabilitation, 25(4), 290–302.
  5. Feldt T, Lintula H, Suominen S, Koskenvuo M, Vahtera J, Kivimäki M. Structural validity and temporal stability of the 13-item sense of coherence scale: prospective evidence from the population-based HeSSup study. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation 2007; 16: 483-493.
  6. Kennedy P, Lude P, Elfström ML, Smithson E. Sense of coherence and psychological outcomes in people with spinal cord injury: appraisals and behavioural responses. British journal of health psychology 2010; 15: 611-621. 
  7. Kennedy P, Lude P, Elfström ML, Smithson E. Cognitive appraisals, coping and quality of life outcomes: a multi-centre study of spinal cord injury rehabilitation. Spinal cord 2010; 48: 762-769.
  8. Kennedy P, Lude P, Elfström ML, Smithson E. Appraisals, coping and adjustment pre and post SCI ehabilitation: a 2-year follow-up study. Spinal cord 2012; 50: 112-118.
  9. Kennedy P, Lude P, Elfström ML, Smithson EF. Psychological contributions to functional independence: a longitudinal investigation of spinal cord injury rehabilitation. Archives of physical medicine and rehabilitation 2011; 92: 597-602.
  10. Kreuter M. Spinal cord injury and partner relationships. Spinal cord 2000; 38: 2-6.
  11. Lude P, Kennedy P, Evans M, Lude Y, Beedie A. Post traumatic distress symptoms following spinal cord injury: a comparative review of European samples. Spinal cord 2005; 43: 102-108.
  12. Stroebe MS, Folkman S, Hansson RO, Schut H. The prediction of bereavement outcome: development of an integrative risk factor framework. Social science & medicine (1982) 2006; 63: 2440-2451.